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Friday, May 29, 2026
When The Rain Falls (Part Two)
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Thursday, May 28, 2026
When The Rain Falls
Side Note: I have been listening to this song quite a few times from a DCOM titled Pixel Perfect and thinking about the message in this ballad is relatively simple: The lyrics are a poetic metaphor for the beauty of mortality, human emotion along with the value of making mistakes. I obviously have made my fair share of mistakes the hard way and learning how to move forward in life when I didn't feel like it was something I needed to deal with or why it had to occur for me as opposed to someone else. I feel very grateful to know that it is perfectly okay to make mistakes and not worrying about being the kind of perfectionist society wants us to be.
Oh oo oo
I don't understand
This should be so easy
To just reach out my hand
And know the world is free
But nothing's as it seems
I can tell you freely
Touching's not the only way to feel
When the rain falls
It's like heaven's crying
When the name's all
The difference that there is
Cause tears are
The same when they are trying to grow something good
Out of all the pain
There's no difference between the teardrops and the rain
Because I know the bones were necessary
I don't let it bother me at all
I know you proudly say
That I'm just talking crazy
To think of life that way
Means that I'm confused
Does happy end this sad
But maybe yes, just maybe
The sadness can make the happiness more true
I have contemplated for weeks now about whether this blog post needed to be written on here or if I just need to keep this to myself. I am obviously one of the most highly sensitive-tender hearted person you'll ever meet and yet I know life is never meant to be a certain way. I continuously struggle on a daily basis with having a genetic learning disorder called Fraglie X Snydrome and knowing that it's one of those things I wish everyday could be something to make disappear while making my entire life a million times easier. I have a firm belief in my heart that the Lord knew I could handle something such as this here on earth and not let it define who I am as a young woman who wants to feel accepted in this world like everybody else. I may visible struggle in social enivornments a lot more than most who have ever had the opportunity to meet me can pick up on the fact I never make eye contact with them even if I want to have a normal conversation. I am grateful for the example of a young woman who inspires me on a daily basis to feel proud of who I am and not worrying about the small things I am not able to have any control over. I know it is not easy having to deal with something that I wish never existed and along side the fact I am striving everyday to become more like my Savior, Jesus Christ is something I know is gonna be the most incredible blessing I could ever ask for. I am not someone who usually is comfortable to write stuff like this on their blog and yet here I am doing all I can to make my life look easy, but I am finding comfort in the sense when I see my Savior again on the other side---it will all come together in a way that I can better understand.
I am someone who despite their challenges in life knows there is someone who wants nothing more than to feel accepted and seen in this world. I have many times wondered if there was a genuine reason as to why the Lord wanted me to have FXS and I know it was because he knew I could take this on with faith in my heart. He knew I was not gonna be perfect or feel like I needed to be someone else I would ever come across in this world and yet I know he was aware of what I came to this earth--- to learn along his covenant path. He knew this was not going to be easy for me in anyway while he does remind me of what I am capable of doing and not trying too hard to be someone I am not in his eyes. It's blessed my life in more ways to know that I am striving to draw closer to him as my personal testimony of him continues to be strengthened.
As challenging and emotionally hard FXS is for me, it has blessed my life tremendously with getting to meet people I have looked up for a while and aspire to be like one day has given me reasons to keep the faith as I move on with anything that shows up on my path. I am grateful for the blessing it is to know that one day everything about this will fall into place and remind me of why it is I came to this earth to become more like the Savior who I love with all of my heart. I know he is never going to leave me alone in trials or difficulties that I know he knows I need to be right now to have me where I will be an instrument in his hands. I love his role in my life everyday and helping me learn to rely on Him in any given situation that life hands over as I am able to trust in what he wants me to do going forward. He has been able to catch me when I literally felt like I was going to fall in a dark hole or did not know what he needs to do next as I walk down this road of knowing he will always be there when I need his help. He has brought peace into my heart when I was faced up against one of the hardest trials of my life and not knowing when I would ever get to feel happy again.
(To Be Continued)
Saturday, May 16, 2026
More Stories
Friday, May 8, 2026
Untitled Post
Entertainment Parade 2026 (Mini Preview)
We still need to have our application that was turned into the city for approval and cannot wait for yet one another incredible opportunity none of us will soon forget. I cannot wait to get to work on our brand new float that will be the star of this event and have something to get decorated for America's 250th birthday coming up in a few short months!!! I am excited to once again be a part of an event that everyone here in the beautiful city of Provo wants to join in on and obviously there will be memories to make alongside my friends who attend classes with us at our independent living center. I cannot wait to see what we come up with in the weeks to follow and hopefully bring some positive energy into the crowd as we take all of our time walking the parade route. I really missed not being able to see a lot more familiar faces alongside the street of downtown Provo and getting to maybe catch up with them if I am lucky---but it will most likely not be a guarantee either. Please stay tuned for more to come later!!!
Advocacy Awards Ceremony (Sneak Peek)
LONG STORY SHORT----One of my colleagues reached out asking me if I would help with reading some bios of our advocacy award nominees at our upcoming leadership conference. I obviously didn't hesistate to accept the invitation and look over what was said about each of our awardees that was all written up by the best executive director I could ever work with. I feel truly honored to be given this amazing opportunity and recognize individuals who have gone out of their way to make the disability community a better place.
Italy Vacation (Next Summer)
I have never been to this part of our world & cannot wait to experience it all next summer when I have the opportunity to do with it my family. I am excited to see what else this beautiful world of ours has to offer... which if you ask me is a whole different story!!! We have planned to do one of those cruises that will take you on at least nine stops to various places and cannot wait to see the beautiful sceneries each of them will have in store for us. I am really excited for the opportunity to explore and try some new things that I hope are going to take a lot of pictures to share with everybody after we have flown back into the states.
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