Saturday, July 2, 2022

Untitled Post

One of my good friends reached out to me about sharing my perspective in regards to what disability pride means to me and since I had missed my chance last year, I decided it was the best time for me to share a little bit about myself. I will give you a brief glimpse into what I prepared for this social media post that will be getting shared within the next few days ahead:



"I have a genetic disorder or a learning disability called Fragile X Syndrome, which basically means that my X chromosomes do not work like they are supposed to and are literally hanging themselves by a thread. (Just an FYI: It can be cured with medications that I have taken my entire life to help me focus and concentrate on whatever it is I am working on to help me not be distracted.) This has been a part of my life forever and can only imagine what would happen long after there is a very legitimate and permanent cure for something like this---I will not struggle anymore with things that have been difficult for me to understand."


It's been really hard to keep this on the down low for some time and the more posts you see on social media will be in regards to this topic. I am grateful for the opportunity to share a little bit of my story, which is a lot more than I've ever shared with people outside of my friendship zone. It's been such an ongoing struggle for me to hide all of this from people and not want to let them know more about what kind of person I am rather than being known for my visible challenges. I may tear up easier than most people in this world do because I'm such a tender hearted person who knows when they have made an absolute mistake to reflect on ways they can fix it rather than fall apart into a million pieces. I am truly grateful for this experience to be highlighted in a post that everyone who knows me will read through and hopefully be inspired. 


(Stay Tuned For More) 

No comments:

Post a Comment